social-ABI-lity 2.0 - using an online training program and a peer-moderated private Facebook group for social media communication practice and support after brain injury

Authors
Melissa Brunner, Rachael Rietdijk, Kylie Southwell, James Baker, Stephen Cooper, Petra Avramovic, Emma Power, Nick Rushworth, Leanne Togher

Background: Social media can be challenging for people with an acquired brain injury (ABI) to use meaningfully and safely. A pilot study found the multicomponent social-ABI-lity intervention to be feasible and acceptable, with participants reporting improvements in confidence and enjoyment in using a moderated group for social connection.

Aims: To investigate the outcomes of the multicomponent social media communication skills intervention with a peer-moderated group.

Methods: A mixed-methods, pre-post intervention design was used. Participants completed a self-guided social media skills course (social-ABI-lity) and participated in a private Facebook group for 8 weeks which was moderated by two co-investigators with lived experience of ABI. Data on social media use and quality of life were collected, and participant feedback was obtained through a post-intervention interview. Statistical analysis compared pre- and post-intervention measures and qualitative thematic analysis that incorporated an auto-ethnographic element was conducted on the interview data.

Results: Seven adults with an ABI completed the 8-week intervention, reporting improved confidence and enjoyment in using Facebook. Although there was no significant change in reported quality of life, participants reported multiple benefits from the intervention. Preliminary thematic analysis highlights the importance of community connection.

Conclusions: This multicomponent social communication and participation intervention is the first of its kind. New insights relating to the peer-moderated group component of this subsequent pilot study will be discussed and contrasted with those of the previous clinician-led pilot study.